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Stomach:
A slave that must accept everything that is given to it, but which
avenges wrongs as slyly as does the slave.
Emile Souvester |
Healthworld online also has a site listing diagnostic laboratories other labs that perform the CDSA.
My Experience With Nutritional Testing
In the first genetic exam I ever had, I was diagnosed with an inherited connective tissue disorder called Mitral Valve Prolapse syndrome, in a large part because of my mitral valve prolapse and pectus excavatum. I was told it was an incurable genetic disorder, and that I had a 50-50 chance of passing on to my (then future) children. Years later I was diagnosed with Ehlers-Danlos syndrome, followed by a diagnosis of an "undefined" connective tissue disorder similar to both Marfan syndrome and Ehlers-Danlos syndrome.
I was always a bit dubious of the MVP syndrome diagnosis, because no one else in my family ever had pectus excavatum. It seemed a bit odd that the doctors could be so sure it was inherited, especially since no researcher had ever actually identified this alleged "bad" MVP gene. Plus, after getting the third unique diagnosis for what I had, the whole genetic exam routine bit seemed to be pretty far from an exact science. Since each connective tissue disorder diagnosis I received was mutually exclusive with the other three, then logically, at least two out of the three, if not all three, of the doctors I had seen had made an incorrect diagnosis.
My skepticism paid off, because through doing my own research I found out that most of my symptoms, including my PE, were most likely linked to nutritional deficiencies and digestive problems, although they probably do have a genetic component, too. Last year I saw a holistic doctor who recommended that I have cellular nutritional testing. The test results showed I had vitamin B12 and biotin deficiencies. This test explained many of my remaining symptoms that I hadn't been able to figure out on my own. Interestingly, the test results not only explained my symptoms, but quite a few of my relatives' symptoms, too, even the ones who didn't really have enough symptoms to be diagnosed with a full blown genetic disorder like me.
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What's
the difference between a general One
treats what you have, |
I found the joke above on a joke Web site. It is meant to be humorous, but I think it actually has a ring of truth to it. I suspect whether or not you get diagnosed with nutritional deficiencies or an incurable genetic disorder depends significantly upon the kind of doctor doing the exam. Truth be told, I believe most inherited connective tissue disorders are part genetic and part environmental, so to get a big picture of what you have wrong with you, it may help to see both a geneticist and a nutrition oriented physician.
A Marfan researcher told me a few years back that mitral valve prolapse is an incurable condition - some thing you are born with or not. An osteopath recently told me that a patient of his no longer showed any sign of mitral valve prolapse on an echocardiogram after receiving intravenous magnesium therapy. Interestingly different perspectives from different branches of medicine towards the same disorder, aren't they? (There's actually more scientific evidence supporting the osteopath's claim than there is the Marfan researcher, as there are many studies showing magnesium treatment is beneficial for mitral valve prolapse, and many studies show MVP is an age dependent condition, most often appearing in women of child bearing age.)
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In
two opposite opinions, if one be perfectly reasonable, the other
cannot be perfectly right.
Oliver Goldsmith |
One of my friends has a relative who is going to school to be a doctor. She told me that out of her relative's four years of medical school, nutrition was covered for exactly one week, and that week wasn't exactly filled with stellar nutritional information. It's no wonder that many conventional medical doctors tend not to know much about nutritional deficiencies.
In my experience, in order to explore the role that nutritional deficiencies and other environmental factors may have played in my connective tissue disorder, I have had to seek out doctors who know something about nutrition. They are certainly not the majority of doctors, but they do exist. In the past few years of seeking holistic care, I've probably learned more about what is really wrong with me than I had in the previous decades of conventional medical care because my problems were all caused by my diet, nutritional imbalances and digestive problems--something conventional medical doctors aren't always trained to look for. Below are some resources to help others to try to find nutrition oriented doctors and other alternative care practitioners.
Related Pages -
Recommended alternative health books
How to find a holistic doctor or dentist
Related Sections of Interest
Genetic Disorders: The Links to Nutrition For
a list of books that helped my connective tissue disorder symptoms, including
my fibromyalgia, TMJ, MVP and scoliosis, please see my recommended
book list.
Visit my home page or my site map to use my search feature, and see information on connective tissue disorders and related features.
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